I'm hoping I will be able to update our blog at least once a week, hopefully more.
We have recieved a genetic diagnosis for Olivia at long last! Whe has a complicated rearrangement of part of her first chromosome. That's about all they know. There is no research on long term, as she is the first case, to our understanding, that they have found whith this particular rearrangement. But the diagnosis does open more doors for continuation of therapies and such!
Other news in our family: Heather will be going on a 2-week mission trip to Kenya, beginning September 4. I'm very excited, and am so thankful for a loving and understanding husband, as well as family and friends who are pitching in to help make this trip happen!
As you can probably see from this picture, Isabelle is doing very well. We have not used her feeding to (except for medicine) since January! She's walking and talking up a storm, and seems to be in the terrific 2 phase early!
As I said earlier, I will do my best to post more than once a week. God's blessings to you all!