Well, this weekend and so far this week we have been pretty busy having fun! Some church friends took us out on the lake in their boat on Saturday, and the girls both went tubing! I. didn't like it so much - but O. grinned from ear to ear the whole time, and never fell off! Then yesterday some other church friends graciously allowed us to invade their pool. The girls are doing so well with their swimming! Both of them can be independent in the water with their floaties on. O. had no fear jumping off the diving board and going down the water slide. She even told me to stop catching her! I can't believe how much my girls are growing up!
We have found a group of parents on-line whose children have the same chromosome deletion as O. - 1p36. There is a conference in Boston in September, and we're hoping to take both the girls. Mike will fly out early in the week for work purposes. We are praying for a flight from Lifeline Pilots for the girls and I, as we can't afford for all of us to fly out on a plane. Please pray for that to go through, as it would be really great to learn more about the deletion, and meet other families. there is even a special activity planned to thank siblings, which would really be spectacular for I. We'll keep you updated.
Give Thanks Always
2 years ago
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