The Seizure Saga

Sorry I've been slack on the posting. I thought I should let you know why, lest you think I'm just being lazy. The next couple of posts will be an update on our spring busyness.

Our dear Ato T has been having something that his neurologist is pretty sure are seizures. This takes a while to figure out. Whenever you get a new specialist, you have to start at your primary care doctor, who then refers you to a specialist, who then has to schedule you for your initial appointment. All of that was done, and we were scheduled for and EEG that week, and then met with the neurologist a few days later. After all of that, he told us what we already knew, "Maybe it's seizures, maybe not. Try to get it on video." So, off we went, and that week I got a good long (16 minutes) episode on video.

I sent it in via email Monday. (This was not as easy at it sounds. We have an old VHS video camera, so we had to find writable DVDs that would work with our player, and then figure out how to copy the VHS to the DVD.)

By the next Monday I had not heard anything back, so I called to check on it. The secretary I talked with told me that because of confidentially practices, she needed to send me a secure email and I needed to reply to that email with the attachment, because they couldn't legally look at the video I already emailed her. (Even though it had been a week, and in order to email it to her, I called her and told her what I was sending, and she said NOTHING about it!) I asked her why she didn't tell me this sooner, and she told me it was because she was busy! Seriously?! This is my baby! He's having BRAIN PROBLEMS! Get it together lady!

I was thankful that she clearly knew she should have gotten back to me sooner, and she sent me the email within 10 minutes. I promptly replied, and she called me 10 minutes later to tell me that her computer not read the file. So I piled all the kids in the car on a rainy day to drive the DVD to them. (Did I mention that this summer we have 3 PCAs for the kids, but there have already been numerous days that NONE of them show up?!)

The Neurologist was out of the office that Monday, but we received a call bright and early Tuesday morning (8:30, which is very early for a Dr.'s office). Our neurologist believes that they definitely look like seizures. So now we have an overnight video EEG scheduled for this coming Wednesday. This is strange to say, but we're just praying he has one while we're there so that we can get some answers.

So that's the story of one of the things that have been keeping us busy this spring. I pray you're all having a fabulous spring! More updates to come!